Resources
Ohio Resources
- Summer is just around the corner! Time to start thinking about summer programming. The United Way Family Information Network has developed a 2011 Summer Programs for Kids with disAbilities flyer for Northwest Ohio loaded with programs and some tips about finding a good program. Click here to view.
- Special Needs Gymnastics Class in Nelsonville, OH! Global Gymnastics Center is offering a gymnastics class for special needs children up to age 18. Classes designed to provide children with recreation and fun and to enrich the lives of these children so that they can achieve new possibilities previously unimaginable. Besides being fun and productive, the special needs program helps build self-confidence in an inclusive and caring environment. COST: $80 Call 753-9771 to enroll. Global Gymnastics is located at 189 Fayette Street, Nelsonville, OH
- To connect to the Ohio Center for Autism & Low Incidence (OCALI) for a free Ohio Parent's Guide to Autism click here
- The Ohio Department of Developmental Disabilities has a Family Chat "listserv" which gives families an opportunity to talk to each other to share information and support. Click here to learn more.
- Preston's H.O.P.E. is an extraordinary playground for both able and disabled children. It is located at The Mandel JCC, 26001 South Woodland, Beachwood, OH (near Cleveland). The $3 million playground, is FREE, and open to the public from 6 am to 10 pm daily.
- Toledo Children's Hospital/Project DOCC Community Resource Guide for Disabilities & Special Needs
- Tools for Today and Tomorrow is a website for families and professionals caring for children with chronic illnesses or disabilities. Contains information about educational opportunities, community resources, articles, links to medical websites, and support. Visit toolsfortoday.org
National Resources
- The American Academy of Pediatrics web site for parents and healthcare professionals at HealthyChildren.org . This interactive and customizable web site is designed for families, and includes information on more than 300 children's health topics, along with interactive tools and personalized content.
- Cleaning for a Reason provides free house cleaning services for women undergoing chemotherapytreatments once a month. Click herefor details!
- DifferentNeedz.com is a website where individuals can buy and sell gently used medical and special needs equipment at discounted prices. Click here to learn more.
- Learn about a Mentoring Program for kids who have a parent in prison
- Online speech therapy services are an alternative way to provide high-quality speech and language services to children and adults. It is also referred to as telepractice or telehealth. The American Speech-Language and Hearing Association endorses the use of online speech therapy. Click here to read their full position statement. For more information visit Independent Speech online or call them at 1-877-480-7913.
Newsletters
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June 2011 issue of the NCC Collaborator by the
National Coordinating Center for the Genetic and Newborn Screening Service Collaboratives (NCC),This issue features Regional Coordinating (RC) partnerships with entities outside of the NCC/RC system. The NCC article is a long one and summarizes a Community Conversation that occurred at the 2011 ACMG Clinical Genetics Conference, Screening for Carnitine-Palmitoyl Transferase, Type 1A (CPT1A P479L) in the First Nations Populations of Alaska and British Columbia. You will be struck by the complex interplay of the scientific, public health, and family issues that truly exemplify the need for the NCC/RC system.
